Survivorship care experiences, information, and support needs of patients with oral and oropharyngeal cancer.

Survivorship care experiences, information, and support needs of patients with oral and oropharyngeal cancer.

Head Neck. 2016 Jan 20;

Authors: Manne S, Hudson SV, Baredes S, Stroup A, Virtue SM, Paddock L, Kalyoussef E

Abstract
BACKGROUND: There is little research documenting the posttreatment experiences and needs of oral/oropharyngeal cancer survivors.
METHODS: In this cross-sectional study, 92 patients with oral/oropharyngeal cancer diagnosed between 2 and 5 years prior completed a survey about oral cancer information and support needs.
RESULTS: About half retrospectively reported that they did not receive a written treatment summary. The desire for more oral cancer information was common; one-third or more desired more information about long-term effects, recommended follow-up, and symptoms that should prompt contacting a doctor. Support needs were less common; only a lack of energy was rated as a significant support need. Patients who had a recurrence, did not drink alcohol, and had a greater recurrence fear desired more information. Smokers and more distressed patients reported more support needs.
CONCLUSION: Survivors reported the desire for more oral cancer information. A desire for assistance was less common. © 2016 Wiley Periodicals, Inc. Head Neck, 2016.

PMID: 26788714 [PubMed - as supplied by publisher]

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