Restless Legs Syndrome “Patient Odyssey” Survey of Disease Burden on Patient and Spouses/Partners

Publication date: Available online 20 December 2017
Source:Sleep Medicine
Author(s): William Ondo
BackgroundRestless Legs Syndrome has been shown to impact quality of life using standardized scales, typically from tertiary referral centers. Little data exists that has evaluated specific life adaptation required by RLS patients, and no survey has ever looked at the impact of RLS on family members.MethodsThe "Patient Odyssey" survey was commissioned by the Restless Legs Syndrome Foundation, and designed to assess the day-to-day impact of RLS on patients and their spouses/partners.ResultsSurveys were completed by 1,622 adult patients (70% female), and 676 adult spouses/partners (65% men; 35% women), either online or by mail. RLS markedly impacted patient sleep, and mitigated travel, work, and mood. Partners also reported impact on their sleep, leisure time, and their relationship with the RLS patient.ConclusionDespite treatment, RLS continues to impact both subjects and their partners. Impact on the partner/family should also be considered in clinical decision making.



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